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IHP-420-X3057 Ethical & Legal Considerations 24EW3 6-1 discussion response to peer #1

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THE DISCUSSION WAS:

In your initial post, respond to one of the following prompts:

1. Direct consumer genetic testing has become popular. A consumer sends a DNA sample, such as saliva, to one of dozens of companies that provide information about common health traits or ancestry. What can these companies do with your data? Should companies be able to sell your data? Should a parent post their child’s DNA profile online? Discuss your thoughts using factual evidence and/or research to defend your position.

2. Many major countries, including the United States, recruit healthcare professionals from around the world to supply nurses and doctors during times of shortages. Discuss the ethics of recruiting highly qualified staff, on a permanent basis, from foreign countries. While the United States benefits greatly, how does this affect the country the individual was recruited from? Ultimately, how is the world affected when professionals are recruited away from their home country? Discuss your thoughts using factual evidence and/or research to defend your position.

3. During the COVID-19 pandemic, many areas of the world did not have access to newly developed vaccines. What factors should be considered on a global scale to improve equitable distribution of vaccinations and other medical technology in the case of a world-wide health crisis like the COVID-19 pandemic? Discuss your thoughts using factual evidence and/or research to defend your position.

I WILL PUT MY DISCUSSION IN THE FILES TOO JUST INCASE.

BUT NOW WE HAVE TO:

In your responses to two of your peers, extend their discussion using factual and/or research to deepen the dialog.

THE PEER SAID:

Direct-to-consumer genetic testing has boomed for use in genetics, offering information on ancestry, health traits, and disease susceptibilities. The growth of this industry, nevertheless, presents sizable ethical, privacy, and data protection concerns. At the core of these worries lies the question of what companies can and should be permitted concerning the genetic data they gather.
These testing agencies hold personal information that, if not secure, could be obtained for commercial use, even without the explicit agreement from those that were tested. Panacer (2023) identifies the ethical dilemmas raised by direct-to-consumer genetic testing such as the quality of information provided, privacy concerns, and the likelihood of psychosocial harm to consumers. These fears accentuate the necessity of tough rules that will make sure that consumers are safe about their genetic data (Panacer, K. S., 2023).
The commercialization of genetic data raises essential ethical issues concerning consent, ownership of genetic material, and privacy rights. Mladucky et al. (2021) proved that although customers of direct-to-consumer genetic testing start accepting data usage for research purposes when there is further disclosure about secondary uses their privacy concerns become higher. This indicates a need for greater transparency and improved consent processes, ensuring individuals are fully informed about how their genetic information might be used (Mladucky, J. K. et al., 2021).

The ethics of posting a child’s DNA profile online by a parent involves another layer of complexity. Considering the stability of genetic information and its repercussions on an individual’s private future and potential discrimination, such information should be shared taking extra care. The risk of harm emphasizes the need to safeguard individuals’ genetic data and consents are acquired and respected.
Thus, despite the advantages of direct consumer genetic testing, it does raise serious ethical and privacy issues. There is a demand for solid ethical guidelines, regulatory supervision, and openly practiced procedures to secure individuals’ genetic data. Addressing these issues is vital for the preservation of the trust in ethical use of genetic data.

References

Panacer, K. S. (2023). Direct-to-consumer genetic testing: Services, limitations, and ethical considerations. Cureus, 39918. https://dx.doi.org/10.7759/cureus.39918

Mladucky, J. K., Baty, B., Botkin, J., & Anderson, R. (2021). Consumer perceptions of secondary uses of genetic data: Privacy issues, consent, and benefit sharing. Journal of Genetic Counseling, 512660. https://dx.doi.org/10.1159/000512660

Required Resources:

Textbook: Medical Law and Ethics, Chapter 11, Chapter 13: “Terri Schiavo, The Face That Moved a Nation” case on page 314, and Appendix A

Chapter 11 guiding questions:

1. What are the main bioethical issues that modern physicians and healthcare professionals face today?
2. What are some ethical decision-making models that can be used to support ethical dilemmas?

Chapter 13 Terri Schiavo case:

Appendix A guiding questions:

1. What is the Hippocratic Oath?
2. What is the Code of Ethics for Nurses?
3. What is the code of ethics for medical assistants (from the AAMA)?

Video: https://www.youtube.com/watch?v=O-rQ3tIabvM (13:06)

NEEDED BY SUNDAY AFTERNOON PLEASE.

A transcript of this video is available: Terri Schiavo Documentary Transcript PDF (https://learn.snhu.edu/content/enforced/1465657-IHP-420-X3057-OL-TRAD-UG.24EW3/Course%20Documents/IHP%20420%20Terri%20Schiavo%20Documentary%20Transcript.pdf?_&d2lSessionVal=e9OVeXgtKDFzCjQH1N6CDyzZi&ou=1143063&ou=1465657) opens in new window

This video provides insight into how the Terri Schiavo case became a political battle over end-of-life issues.

https://ezproxy.snhu.edu/login?url=https://search.ebscohost.com/login.aspx?direct=true&db=edb&AN=158582590&site=eds-live&scope=site

Read this Shapiro Library article to explore the ethics and effectiveness of COVID-19 vaccine mandates.

https://ezproxy.snhu.edu/login?url=https://search.ebscohost.com/login.aspx?direct=true&db=edswss&AN=000656480500002&site=eds-live&scope=site

Read this Shapiro Library article to explore the practical and ethical problems of allocating limited medical resources such as intensive care unit beds and ventilators for people with disabilities during the COVID-19 pandemic.

https://gh-bmj-com.ezproxy.snhu.edu/content/7/12/e009876

Review this resource to explore equity and morality related to COVID-19 vaccinations.

Additional Support (Optional):

Video: https://www.youtube.com/watch?v=Fyr2FCT62JM
(4:34)
This video discusses the moral issues around organ donation.

A captioned version of the video is available: Video: https://www.youtube.com/watch?v=KnxzI1pWH1k&feature=youtu.be

 

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